What is it like to know that your child's time is limited? And even if he doesn't pass away before the age of two, he will never fully recover, and he will never be able to walk? To keep Dima alive, it takes just a little – our help! Doctors have already done their part – they have diagnosed and prescribed treatment, but sustaining the child's life comes at a high cost for his mother. Dima has a stoma in his throat that he breathes through, requiring regular cleaning. Unfortunately, his mother can't afford to buy new sterile tubes, so she has to reuse old ones multiple times. This poses a significant risk to Dima's weakened immune system. "When I received my son's diagnosis, it felt as if the ground had been ripped from beneath me. It was like being drenched in icy water! I felt so physically unwell that the doctors had to help me regain my composure. Spinal muscular atrophy type 1 – I was already aware of it... it was the most devastating news for my dear Dima."